Cancer Timeline

Flushing_the_PICC
Here’s a recap of the week’s events – for those who prefer to read, the transcription is below the video. Also some new photos. Video Transcription & new photos Hello there. I thought I’d do an update from the greenhouse here. I’m stepping outside. We’re letting the chickens go for a walk right now, but …

Out with the PICC, in with the port. Read More »

November 22, 2019
feeling a little off
November 14, 2019

Off Week

— Wednesday, Nov. 13 — Didn’t sleep well last night. Feeling a little off. Kinda like in the old old days as a bachelor in the Army and the morning after we’d gone out the night before. Not hurting or sick, but a little sluggish and the equilibrium could use a tune-up. 😉 I made …

Off Week Read More »

November 14, 2019
port
If all goes as planned, this will be another ‘week off’ from the chemo routine.  Kinda back to ‘normal’, right?  Well, if nothing else – it means I won’t have to get up early to catch the DAV bus.  I wonder if they miss me?  Ha Ha – or Hi Hi for my ham radio …

Normal and The Port’s Back On Read More »

November 11, 2019
dav-van-wait
November 1, 2019

Halloween 2019

— Thursday, Oct 31 — Rolled the dice on another Thursday van ride. (I’ve been told that few people ride on this Thursday route). Fewer riders = better chance of getting out of there early. Not today. Two other riders and two hospital discharges. (They don’t ride in with us, but ride back if discharged …

Halloween 2019 Read More »

November 1, 2019
alternator
October 28, 2019

Feeling a little foggy today

Finally slept through the night, woke up about 6:45 am – it’s 2:56 pm now, I’ve worked all day and still feel a little foggy like I just rolled out of bed. Maybe after another night’s rest, I can latch onto ‘normal’. Thankful that I’m still able to swap out an alternator over lunch even …

Feeling a little foggy today Read More »

October 28, 2019
unmasked
October 26, 2019

Keep’r Movin’

Well, I came to treatment on Thursday all masked up – thought I’d take one of the iconic bathroom selfies.  Only this is the VA bathroom, probably cleaner than mine, lol! Labs came back and yay – not neutropenic anymore, numbers back over 1000 (normal being 1500+ so I don’t have to mask up everywhere …

Keep’r Movin’ Read More »

October 26, 2019
LOL
Tuesday, October 15, 2019. So I got to see Dr. Levin yesterday and got my labs taken care of. All the numbers came back good, the chemotherapy is working well, and we’re going to drop one of my medications which should help build up my white count faster. We talked a few minutes about the …

Newsletter update – Week of LOL Read More »

October 20, 2019
cancer can't
October 14, 2019

PICC Predicament

So we talked last week about getting a PICC installed and that process went pretty well. I had an appointment in Green Bay to get the PICC line inspected and bandage removed and replaced because these things need to be looked at weekly. Upon inspection, the nurse found that my arm appeared swollen and red …

PICC Predicament Read More »

October 14, 2019
ken masked up
October 4, 2019

A Little PICC Me Up

Thursday, October 3, 2019 Dictated to Google, please forgive the rambling – but an in-depth hand-written update – ain’t nobody got time for that! Well, today didn’t go quite as planned, but then does any day really go as planned? I was scheduled for my typical chemo treatment today in Milwaukee and the folks there …

A Little PICC Me Up Read More »

October 4, 2019
Getting Chemotherapy
I dictated this to Google.  And I’m too lazy at the moment to do much in the way of editing, so please forgive any errata. I know it’s been some time since I’ve offered up a real update on what’s going on with my health. Part of that is because I’ve enjoyed an 18 month …

Fell off the wagon. Just a little. Read More »

September 30, 2019
i get knocked down
You get back up again. 😉   So that’s what we’ve been doing. It’s been quite a while since an update – it’s been on my list for some time now and is quite overdue. So once again, thanks to everyone who’s supporting us on this crazy journey. If you’ve been following me on my …

What do you do when you get knocked down? Read More »

February 11, 2019
bone strengthener
August 15, 2018

August 2018 update

Here’s the latest on my treatment / condition: As you may know, I have monthly visits to the Milwaukee VA for treatment and tests. I’m currently getting a monthly IV for a bone-strengthening medication which is not chemo (I take that via pill daily) but is dangerous enough for the nurse to have to wear …

August 2018 update Read More »

August 15, 2018
vein scan
April 18, 2018

Post-Transplant tests

So, in the recent past I’ve been going through another battery of tests (the 100 day mark) for post-transplant. Still waiting on an MRI, but all other tests have been A-OK and I’m still in remission. 🙂 Soon, I’ll start a ‘maintenance’ regimen of low-dose chemo to suppress the cancer for as long as possible. …

Post-Transplant tests Read More »

April 18, 2018
November 13, 2017

Transplant in Nashville

Good evening friends. Just thought I’d let you know that my bone marrow transplant process has been started. I’m in Nashville undergoing initial testing as we speak. The Nashville VA Medical Center recommended that I share information on this page: https://www.mylifeline.org/teamkenny/updates It has a provision for sharing updates and is better at handling replies etc. …

Transplant in Nashville Read More »

November 13, 2017
window to the world
November 2, 2017

Transplant News?

A lot can happen in 15 days. I’ve been enjoying my status of “total remission”, but honestly – I don’t feel anything different. Still have the rib/back pain all. the. time. Was hoping it would go away or at least decrease some. But it’s manageable so I’m good. Been to the dental clinic twice (see …

Transplant News? Read More »

November 2, 2017
mke drive
October 24, 2017

Keep on keepin’ on

Good morning, friends. Here’s a quick update. This week was pretty smooth. Only one trip to Milwaukee, and that for chemo. I know, last update mentioned a biopsy, etc., but I was a week ahead of myself, so two trips to MKE next week. Would have been three, but that starts my week off of …

Keep on keepin’ on Read More »

October 24, 2017
hospital signage
October 17, 2017

Good News

Pretty good news yesterday. Doc reviewed MRI and biopsy, found no trace of cancer in my blood or bone marrow. He says I’m in “total remission”, and had the highest level of response to the treatment, a rarity given the progression of the disease. Prayer works. Yeah, he said that too. Praise God! I’ll still …

Good News Read More »

October 17, 2017
appointments
October 16, 2017

Lots of appointments

I usually spend a few minutes each week checking and updating my VA appointment calendar in my phone – because I never want to miss an appointment or be late. My job, since being diagnosed, is this: Be the perfect patient. Do what the doctors say. Don’t give anyone a reason to deny me a …

Lots of appointments Read More »

October 16, 2017
bone marrow biopsy
October 10, 2017

Bone Marrow Biopsy II

Well, today marks the last ‘test’ prior to being approved for a transplant – another Bone Marrow Biopsy. The first one (as I was being diagnosed) was excruciating – because they couldn’t give me anything to dampen the pain. It felt like a hammer and chisel were being forced into my tailbone, and then a …

Bone Marrow Biopsy II Read More »

October 10, 2017
concrete
October 6, 2017

Chemo & Concrete

It’s been a bit since the last update, I’m thinking that’s a good thing. With cool weather approaching, I’m trying to take advantage of what’s left of my mobility to get some things done. Last weekend Robin & I poured a little section of concrete to join the driveway to the sidewalk which allows a …

Chemo & Concrete Read More »

October 6, 2017
mental tests
August 29, 2017

Mental

As part of the ‘qualification’ process for a future transplant, I must undergo several systems tests to make sure everything’s working as it should – cardiopulmonary, skeletal, etc. – Today was the Mental Health assessment – part two, actually. The first was a computerized quiz of sorts, today was a totally human interview. I was …

Mental Read More »

August 29, 2017
pill box
August 23, 2017

Post-Dental age

Well, it’s been just over a week since they pulled all my teeth, and the healing process has been grueling. Yesterday was especially aggravating. The pain meds described as “the good stuff” ran out a few days ago, so I’ve been using my normal pain meds to try and mitigate the pain. Hasn’t really worked …

Post-Dental age Read More »

August 23, 2017
August 16, 2017

Ouch. Very much ouch.

Well, there you go. Tuesday was the procedure – to remove all of my teeth. Not fun. Not one bit.
August 16, 2017
camera
August 4, 2017

Radioactive

And now I’m radioactive. At least until tomorrow. One of my tests required radioactive material be injected in my bloodstream in order to “take pictures”. This is the “camera”. My attendant was not so comely. 🙂
August 4, 2017
no teef
I’m going to file this under “didn’t see that one coming”. 🙂 So, Doc wants to put me on medicine to strengthen my bones. Before he can do that, I have to undergo a dental screening – during which they find bone loss around many of my teeth. (I’d lost bone in my hips too, …

Nope, didn’t see that coming Read More »

July 31, 2017
June 9, 2017

Freedom

Well, alrighty then! The powers that be have seen fit to release me into the wild, as it were. My “screw & glue” seems to be holding up well, and I’m shuffling along with a walker and only use the wheelchair for longer distances. For the past few days I’ve been nursing a cough – …

Freedom Read More »

June 9, 2017
screw and glue
June 8, 2017

Radiation complete

Radiation complete! Today I received my last scheduled treatment, and can now resume chemotherapy. The radiation targeted the tumors in my hip area so that additional damage to the joints will be minimized or hopefully averted. Here’s a picture of my ‘screw & glue’ joint fix – the dark mass is the cement they injected …

Radiation complete Read More »

June 8, 2017
screw and glue
June 6, 2017

Screw & Glue

Tomorrow I’m scheduled to undergo a procedure called “screw & glue” so that my hip joints (what’s left of them) can be stabilized. Hopefully I’ll be able to walk after that. (I’m currently relegated to a wheelchair). Prayers are appreciated.
June 6, 2017
There was a time when I had good health insurance. Unfortunately our healthcare system isn’t what it used to be. I’m going to update the “goal” to reflect the costs that are not covered, so as the bills come in, that number will increase. Again, thank you for your prayers and support. Ken
June 6, 2017
June 5, 2017

I’m radiant.

Today I received radiation treatment #2 of 5. They’re targeting my hip joints to stop the cancer from further damaging the area. You really don’t feel anything when they’re doing it, which is good. 🙂 Three more treatments next week and then it’s back to chemo. Thanks again for being a supporter. You’ve made this …

I’m radiant. Read More »

June 5, 2017
on like bing-bong jack!
How to follow my Journey October 5, 2019 I’d originally posted an announcement of my diagnosis on a GoFundMe page on the advice of a friend who had gone through cancer and is still fighting now, praise God.  (It’s toward the bottom of this post) He rightly claimed that it would help offset the many …

My Multiple Myeloma Journey Read More »

May 31, 2017

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