Robin rode shotgun for this one, and I’m glad she did. This is one of the most dreaded experiences in my clinical trial therapies. T-Cell collection via Mahurkar, which I refer to as “jamming a garden hose into your jugular”. I’ve had it done before, and you may recognize my disdain from prior posts. 😉 …
“A day in the life” – a day of tests to see if I qualify for the upcoming clinical trial.
Here’s a quick update.
The one constant about this journey is that everything changes. Constantly. 🙂 The doc needed labs were drawn to see where my cancer numbers are – and depending on that, he’d put me back on my weekly chemo pills and sub-q shot while we wait for the clinical trial procedures. Well, insurance said the copay …
Getting ready for the CAR-T trial requires that the folks at Dr. Frankenstein’s lab get some of my T-cells. The process itself isn’t too bad, much like donating plasma at your neighborhood blood bank. Getting the plumbing done is a pain in the neck though. The plumbing part requires a Marhurkar (huge catheter) installation in …
Hey folks – as you can see, I’ve opted to move my email notifications back to Tuesdays, as most of my appointments are now on Fridays. Hope this doesn’t cause too much confusion. You can also get an occasional ‘side’ update on the FB group (if you’ve been invited). Since Christmas, there’s been a bit …
Merry Christmas everybody! Well, almost Christmas anyway. I thought I’d throw out a quick update before this thing goes up out in the newsletter tomorrow. Tuesday I got my cataract surgery done on the right guy, and everything went well. It was a little irritating at first but the next day the irritation quickly subsided. …
Hi folks, I’ve had a few folks asking for an update, so here it is. 🙂 Since my discharge from the hospital, I’ve been growing ever so slightly stronger every day. Hemoglobin doesn’t seem to be recovering though, in fact I’ve come down a few notches. Might have to eat more spinach. I’ve been doing …
Well, I promised Selena an update for you, so here goes. On last report, I think I was needing some additional O2 to relieve the “fluid overload” (as described by the cardio team). First, fluid was prescribed to relieve the calcium excess – and then the chemo also included massive amounts of fluid – (I …
I’m convinced that I may have the shortest period of remission in recorded history, LOL! As I’d said yesterday, I had to come back in today for labs. Well, turns out the cancer is spiking – so it’s back to the ole drawing board. I’ve got another mini-vacay at Froedtert while they give me fluids …