April 11, 2022

Mahurkar line

Robin rode shotgun for this one, and I’m glad she did. This is one of the most dreaded experiences in my clinical trial therapies. T-Cell collection via Mahurkar, which I refer to as “jamming a garden hose into your jugular”. I’ve had it done before, and you may recognize my disdain from prior posts. 😉

I’d have loved to compile some media of the day since everyone liked the format of my last update. I do have some pics and a brief video, but not enough to make a nice homage, lol. Here’s what I do have though:

Here’s a brief clip of the separator – we were in fact inseparable for about 4 1/2 hours.

https://www.youtube.com/shorts/w8cYnCWkx4Y

If a day ever embodied the term “Murphy’s Law”, this was it.

  1. Had to wake up by 4:00 am to get there by 6:00 am. The actual wake time was 1:15 am.
  2. It was determined I had a low-grade fever which threatened the procedure.
  3. As with the last Mahurkar placement, the surgical team experienced difficulty. And this one was decidedly more painful than previous procedures.

All in all, everything worked out and I’m one step closer (if the extracted cells behave) to the therapy that promises a bit more normal life. LOL… We’ll see. If nothing else, I’m hoping my participation in these trials helps others, as those who came before me are affording options I wouldn’t have had just a few years ago.

Sorry I didn’t get this out prior to Tuesday’s scheduled email, but I was REALLY tired. This one took a lot out of me. Which reminds me – if you haven’t already, feel free to subscribe to the infrequent email updates below. They’re a bit irregular, as my treatment schedule dictates, but most people like getting a ‘digest’ anyway. 🙂

Ken Ivey

Ken Ivey

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